I can’t believe that, as of tomorrow, it will be two weeks already since the completion of my 500-mile run across Colorado for epilepsy awareness. It seems like only days ago that I looked at Marcus as we were driving over Molas Pass and voiced my decision to run. It seems like I stepped onto that New Mexico/Colorado border just minutes ago. Now I am in the process of figuring out what’s next to come for LaBaw Life: Move Mountains. But the timing for continuing my mission to educate and bring awareness to this condition hasn’t been better.
November is Epilepsy Awareness month. I am going to be posting about statistics, research and personal testimonials. I hope to get medical professionals focusing on epilepsy and people living with epilepsy to participate in some awareness efforts with me. If there is anything you really are dying to know, or maybe just a little curious about, please let me know and I will do my best to get information posted regarding your questions.
To start with, here are some basic, but shocking, stats regarding epilepsy sourced from The Epilepsy Foundation website.
- 65 million people around the world live with epilepsy
- Over 2 million people in the US live with epilepsy
- 1/3 of these people live with uncontrolled seizures because no available treatment works for them
- 6 out of 10 people who are diagnosed, the cause is unknown
- 1 in 26 people in the US will develop epilepsy at some point in their life
Stay tuned tomorrow for a guest post from someone, who just 2 months ago on the New Mexico/Colorado border, touched my heart and soul. This man has been living for 5 years with epilepsy, in the dark with fear and embarrassment. His story will bring you to tears.
Also, I will be keeping the Move Mountains Fundraising page open through the end of this month.
If you want to share your story or a loved ones story, please don’t hesitate to email me at firstname.lastname@example.org. Please help me get rid of the global burden and stigma with epilepsy.
“Each one of us can make a difference, together we make change.” ~Barbara Milkusi